dr. C.M. van Leersum (Karin)

About Me

I am a postdoc researcher involved in the TOPFIT CitizenLab programme. A three-year research and innovation programme focussing on Citizen Science. In the different project belonging to this programme citizens, healthcare professionals and companies join forces with researchers to develop and implement technological innovations for health and healthcare. In the programme we work together with a group of researchers form UT, Saxion and ROC. Besides investigating the theories and practice of Citizen Science, I mainly take a social practice approach to study how diverse groups of citizens integrate innovations and new forms of health information and data into their daily lives and practices. Possible questions consider how citizen’s practices create tensions and alignments with the practices of health and care professionals. How do relations and communication between citizens and health professionals change with the introduction of innovations? The innovations could include self-measuring and self-management apps. In the pilots as part of CitizenLab, we will study innovations and practices related to diabetes, healthy citizens at work, rheumatism, and elderly care.

I have further interests in the research area of Shared Decision Making and collaborative deliberation. Together with clients in long-term care settings, I have developed a tool to talk about ‘What matters most’ in your life and care and to improve quality of life after a difficult decision-making process? The underlying questions, how to perform and enhance preference construction and elicitation in consultations? How can a tool assist clients and their professionals in the search for more personalized care?

I received two master degrees at the University of Twente, in Technical Medicine (2015) and in Philosophy of Science, Technology and Society (2015). Before starting a PhD, I have been a research assistant in marine biology (in the Seychelles) and cognitive neurosciences (at the UT). I have done my PhD at the University of Maastricht at the department of Family Medicine. The title of my PhD thesis: “What matters to me” – Research into preference elicitation for clients in need of long-term care.

As a PhD candidate I have served as representative of CAPHRI (Care and Public Health Research Institute) for the faculty of Health Medicine and Life Sciences, and Maastricht University at the national PhD board meetings.


Medicine & Life Sciences
Long-Term Care
Mobile Applications
Referral And Consultation
Type 2 Diabetes Mellitus
Social Sciences
Engineering & Materials Science


In the coming years I will work together with the other researchers of CitizenLab to investigte Citizen Science. Collaboration and performing research together with citizens. Investigating the theory, ethics, and methodologies of Citizen Science.

Within this larger project I will focus on social practices. Study diverse groups of citizens and explore how they integrate informations, innovations, and new forms of data in their lives.

I have received two awards during my PhD:

  • A jury award for a pitch and poster presentation in 2018. The title of this poster: What matters to me – developing and improving a web-based tool for clients in long-term care.
  • A public poster award in 2019. The title of this poster: Challenges of preference elicitation makes it tough to realize the policy ideal of client-centred care.


van Leersum, C. M., van Steenkiste, B., Wolf, J. R. L. M., van der Weijden, T., & Moser, A. (2022). An observational study on the process of collaborative deliberation in arranging long-term care: The perception of clients and professionals. Clinical Ethics, 17(3), 297-310. Advance online publication. https://doi.org/10.1177%2F14777509211036647
van Leersum, C. M., Moser, A., van Steenkiste, B., Wolf, J. R. L. M., & van der Weijden, T. (2022). Clients and professionals elicit long‐term care preferences by using ‘What matters to me’: A process evaluation in the Netherlands. Health and Social Care in the Community, 30(4), e1037-e1047. Advance online publication. https://doi.org/10.1111/hsc.13509
van Leersum, C. M., van Steenkiste, B., Moser, A., Wolf, J. R. L. M., & van der Weijden, T. (2020). Proposal for a Framework to Enable Elicitation of Preferences for Clients in Need of Long-Term Care. Patient Preference and Adherence, 14, 1553-1566. https://doi.org/10.2147/PPA.S257501
van Leersum, C. M., Moser, A., van Steenkiste, B., Reinartz, M., Stoffers, E., Wolf, J. R. L. M., & van der Weijden, T. (2020). What matters to me – a web-based preference elicitation tool for clients in long-term care: a user-centred design. BMC medical informatics and decision making, 20(1), Article 57. https://doi.org/10.1186/s12911-020-1067-6

Contact Details

Visiting Address

University of Twente
Drienerlolaan 5
7522 NB Enschede
The Netherlands

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Mailing Address

University of Twente
P.O. Box 217
7500 AE Enschede
The Netherlands