I'm a PhD Candidate at the University of Twente, engaged in research focusing on patient advocacy in healthcare systems. Our work is organized around the VOICE project, which centers on five focus areas: Value, Organization, Impact, Compensation, and Equity.

Our research explores how patient representatives experience their roles and investigates the interplay between Value (perceived worth of expertise), Organization (structural embedding), Impact (effectiveness), Compensation (recognition and appreciation), and Equity (fairness and equal conditions in participation). 

Together with a group of cancer patient representatives, we co-create this research to ensure our findings are grounded in real-world practice and translate into actionable insights for stakeholders across the healthcare sector.

By utilizing rigorous qualitative and quantitative methods alongside policy analysis, our aim is to move beyond academic findings and produce practical recommendations that strengthen patient participation and contribute to improved organizational and systemic practices.

Expertise

  • Nursing and Health Professions

    • Inflammatory Arthritis
    • Life Expectancy
    • Content Analysis
    • Qualitative Research
  • Social Sciences

    • Choice Experiment
    • Discrete Choice
    • Rheumatoid Arthritis
  • Psychology

    • Decision Making

Organisations

Publications

2025

Health Outcome Preferences and Trade-offs Among Older Adults With Advanced CKD: A Discrete Choice Experiment (2025)American Journal of Kidney Diseases, 86(5), 624-633.e1. Schoot, T. S., van Til, J., Groothuis-Oudshoorn, C. (. G. M., Rombeek, C., Lusseveld, M. J. F., van Marum, R. J., Hilbrands, L. B. & Kerckhoffs, A. P. M.https://doi.org/10.1053/j.ajkd.2025.06.010PCR171 Using a Citizen Science Approach in the Development of a Discrete Choice Experiment With People With Rheumatoid Arthritis (2025)[Contribution to conference › Poster] ISPOR Europe 2024 (Unpublished). Lusseveld, M.

Research profiles

Address

University of Twente

Technohal (building no. 18), room 3301
Hallenweg 5
7522 NH Enschede
Netherlands

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Organisations

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