dr. R. Wolkorte (Ria)

TopTreat

Towards precision treatment for advanced osteoarthritis

In TopTreat we aim to personalize the management and treatment of osteoarthritis. Through different research activities we want to better understand how osteoarthritis develops for different people, and what would be the best treatment for each person. My role is on ensuring a close collaboration between researchers and patient partners, to include the knowledge of patients already in the research process. The project is a collaboration with Roessingh, Sint Maartenskliniek, Radboudumc, ReumaNL, ATRO Medical, Moveshelf, and the Ministry of Defence.

DIRECT-DCIS

Dynamic Integrative Risk forEcasting to Conquer overTreatment of Ductal Carcinoma In Situ

DIRECT-DCIS project aims to provide optimal care for women diagnosed with DCIS. In the project, we develop a dynamic predictive modelling tool - based on explainable AI - where general information on DCIS is combined with the personal information of a patient. This provides the best information on risks to develop breast cancer, to inform a decision between immediate treatment or a wait-and-see policy. This helps women and their physicians to make an informed decision on their care. My role is to optimize patient involvement in the different research projects. The project is a collaboration with NKI/AVL as PI, many universities, university hospitals, companies, knowledge organisations, and BVN (patient association). The project is financed by NWO-NWA and different private parties.

Long Covid Toolkit

The long covid toolkit is a practical online toolkit offering validated scientific research and experiences of patients and healthcare providers concerning interventions for long covid. It is developed by people with long covid, for people with long covid. I am involved in gathering the scientific information on different interventions, and to collect information on patient's experiences with using those interventions. The project is a collaboration with the Stichting Long Covid Toolkit and is financed by ZonMw.

TOPFIT Citizenlab

a large consortium of knowledge institutions (University of Twente, Saxion applied university, ROC Twente), healthcare organizations (Roessingh Research&Development, ZGT, etc) and industry (Demcon Hemics, etc). Research in health and technology through applying citizen science.

ECIE

ECIE is a collaboration of 6 European universities within the ECIU consortium. The focus of ECIE is to improve empowerment, inclusiveness, and equity of citizen science projects